Cincinnati Day 7

The "dark night" has passed. It was a pretty tough yesterday and a good bit of today. But Kyle seems to have turned a corner. In the last few hours I seem to see the light at the end of the tunnel. My apologies for withdrawing from texts, emails, phone calls and blog updated. I was beyond help. Some things just have to be endured alone. That dark time is always part of a hospital stay for me. Its always pretty dreadful. With patience, prayer and time, I think it's past now and I've shifted into my new role of the mom and Kyle show. Now all you adoring readers can stop worrying ;)

Today was busy getting on top of Kyles pain and sorting out the nurse shuffle that kept happening over the last day and a half. We had a twelve hour nurse today and the nursing manager for the unit came in to apologize for the inconsistencies and strain it caused. That was nice. Kyles diet is back to as tolerated and he asked for pringles and orange juice. Throughout the day he nibbled on carrots, olives, lettuce, green beans, and broccoli. He drank a bit of "dads pop" too. His tummy still hurts and he isn't on full strength Elecare yet. We have time so I'm not rushing it.

His bowels have moved- a lot... Had to change everything from the skin out and have a bath. I wasn't to happy about that - it's what we were hoping to "fix". I did learn to use his neo-Malone (from now on I'm just going to all it a Malone). I gave him his first enema flush. It was relatively easy! We had a fast positive response and I'm really encouraged. Afterwards as of now, he is totally clean. It's been 3 hours. Dr Levitt expects that it will take a lot of tweaking over the next few months to get the enema flush "right". That doesn't sound fun to be but it another one of those things that can't be avoided. We have had poo issues and 'twas foretold we will have more poo issues. That's what happens with Hirschsprungs disease. Yuck!

Kyles IV fluids were turned off. The PIC is still in place but once he was not connected to anything he decided life was much better. I got him dressed in regular clothes and we went on an adventure. We went to the pharmacy, the gift shop and the cafeteria. He walked about 1/4 mile in all. He was tired so we had a movie and snuggle time. Then he decided he was ready for more. He got off the bed himself, walked round and decided he wanted to get on my bed. (parent chair pullout) and do puzzles. Then we did laundry, got dinner and went to the play room where we played pool! And Kyle flirted with the nurses who all thought he was adorable. After a very full day we snuggled and Kyle fell asleep. He is sleeping peacefully now and I will he too soon.

Dr Levitt did say that if he continues to do well we can fly home on Saturday. I'm trying not to get to excited but that's pretty great. An interesting unrelated tidbit is the family next door is from Russia. I might talk to them tomorrow.

That's all from here for now. For some adorable pictures of Kyle feel free to visit idahobeans.blogspot.com. (I can't post photos to this page from iPhone)
Hopefully I didn't freak too many people out with my candor. I'm just human and honest about it. Anyway here's hoping tomorrow is a great day!

Spring