Our Treasures

Our Treasures

Friday, June 22, 2012

The hospital, again

> This morning Kyle is in the hospital in Logan Utah for ear tubes and a hearing test. Lauren came with us today. She is helping me with Kyle and gets an up close and personal look at what exactly happens at the hospital.
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> Dr Bennion is going to do 2 weeks of Biaxin for possible mycoplasma bacterial infection in the neomalone and the non healing part of his ear. And use antifungal drops for the drainage in his right ear in a couple weeks. Then Kyle needs rechecked in about 6 weeks.
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> Of all the strange twists, Kyles hearing test came back normal-mild loss at 25 decibels in his right ear (it's the one that had reconstruction surgery in January). No tube is recommended and no hearing aid is recommended for the previously profound loss ear! The doctors said its highly unusual for this much hearing loss to recover. They said its a priesthood miracle. It is possible to fluctuate a bit - this is just not typical. I'm not sure how to Wrap my head around that after all the heroic time and effort we have put into improving/saving his hearing. Left was still at moderate loss neurosensory. It's stable and we will continue to aid it. But we are going to try no tube for a few months and see what happens. Both the ENT and the audiologist expressed lots of confidence in my judgement about watching Kyles symptoms and getting medical care/intervention for Kyle as needed They said they wouldn't trust everyone so much but with me they do! It's a very nice compliment and a very heavy weight! What if I miss things? Eek it's a lot of responsibility!
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> So yet another loop in the roller coaster of Kyles health and life. The extremes are so extreme. Total hearing loss in right ear one year ago now normal! What?? I'm afraid to believe it. What if it's a fluke? Is there a cyclic hearing loss disorder? ? Kind of like sierras when she was diagnosed got a hearing aide then on retest had normal hearing. The doctor said possibly. Also said it could be related to his immune deficiency...

What fun. I'm glad it's good news!
> Spring

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