Today was a record day. We has a 5 that's right, 5 hour clinic visit. Lots of waiting. 3 RNs 1 fellow and 1 md. Dr Kimberly risma, immunologist.
She asked how we got to her clinic. I told her the EE clinic put us on your schedule. More than that I don't know. She was very nice and appeared very knowledgeable and after we discussed Kyles issues said, that's a lot for you to deal with took my hand and said I'm going to add to that List. She started to explain how, I became totally confused (which is hard to do to me...). When I said I felt like I was missing something she said she was too and we needed to wait for the labs to come back. And wouldn't say more. It has something to do with T cell malfunction And lymphocytes etc. I called again later back to our nurse and she dodged my questions. And just said wait.
It feels like they are slowly preparing me for really bad news. I'm aggravated I don't know what yet. I have some guesses but none are good. It feels like one of those defining moments in life is approaching.
Then on tip of that Kyle developed on infection at the revision site. It's quickly spreading and getting bad.
Anyway, lots to look forward to for tomorrow. I'm packing the hospital bags just in case...
Spring
No comments:
Post a Comment