Well we are leaving in the morning for Idaho. Kyle is responding well to the iv antibiotics and we will be discharged straight to the airport in the morning. I'm so glad that Louise has been here with me.
It's been a week at the hospital. Literally. The two days Kyle wasn't in the hospital he had clinic visits literally all day long. We have done no sight seeing and very little playing. Thats what happens with two admits in obe week! Poor Kyle has had 4 iv's and one blood draw and one missed stick! And two OR visits. It's been fun.
I have "danced" toe to toe with colorectal surgery, GI, allergy, pain, psychology, infectious disease, and immunology. If anyone needs me to advocate for them speak now before I take a break and sleep for a week! Oh right, I can't I'm going home to soothe the ruffled souls at home who have missed me. Well get in line. I'm taking applications for next week. Then I have to repay myself and recover because as cool and strong as I have been, nothing is free and I'll have to work just as hard to recover as I've had to I order to take Care of Kyle. I sure treasure my little man! I also sure value doctors like Marc Levitt, who is not only amazingly skilled but a patient advocate too! He is the reason things turned out so well.
I understand Kyle on a new level and I have a plan of care in place for each of the above areas and it's going to be quite good for him. I've used my brain alot. I've got a great team assembled. I'm not worried about if his life is in danger after today. There are a lot of things pending and some will be new problems that I have to learn about. They will have to be grieved over. I'm never sure what the future holds but I'm ready to face it.
The team leaders are Marc Levitt, colorectal, Kimberly Risma - immunology, Bill Putnam - GI, Connelly,- infectious disease.
Albonia - allergy and Franchosi - Gi did not make the team.
So I'm hoping that over days and the next few weeks my body will un-tense and I can pay the emotional toll from the week.
Day 8, heading home. Nite nite
Spring
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