Kyle's voice

Kyle has been very sick the last month. In fact he got released from the hospital again on Monday Dec 23,2013. He is improving finally I hope. One thing that happens with Kyle is that he stops vocalizing and signs less than usual. He also yells a lot. Tonight Dimitri was getting a little tired of Kyle's yelling. I asked him why he thought Kyle was screaming.

He said "because Kyle needs a voice".

How true. Dimitri volunteered to be Kyle's voice.

The little pearls of parenthood. Sigh

Spring

Progress! Dec 18, 2013

After 4.5 months we finally are getting out back together again. Hooray!

Fwd: Heads up

So much fun!  I look at things from too broad a perspective sometimes. Yet this is my reality.  Here is another one of those time. From November till now the following events have happened: 

Spring ran 1/2 marathon

Kyle hospitalized for enterocoloitis and delayed moms anniversary trip to the Bahamas 

Spring and Alan went to the Bahamas

Alan came back to the USA and went to work for 10 days 

Spring and Kyle went to Cincinnati Ohio where we learned that Kyle needs airway reduction and ear reconstruction urgently. 

Kyle had bilateral strabismus repair 

Spring and Sierra got sick with fever, chills, nausea and vomiting and diarrhea

Sierra still has a fever of 101.7-103.7 four days later. 

Kyle, dimitri and Alan are all getting sick this morning. 

The Bean house has been under construction daily for the past month. 

I'm scheduled to pick up lauren on Thursday  and meet with her psychD to discuss discharge criteria. Which makes me nauseated just thinking about that whole experience. 

Christmas is in 8 days. Not one gift has been wrapped. Not one treat has been made. A few decorations are up. 

Kyle is on the line for turning very south and needing hospitalized. 

Any wonder I can't sleep???!!!!!  I'm going running. 

Spring 

Begin forwarded message:

From: Spring Bean <springcbean@gmail.com>
Date: December 17, 2013 at 6:45:14 AM MST
To: Mom Turner <loisturnerndr@gmail.com>, Dave Turner <dturnerndr@gmail.com>
Subject: Heads up

Dear mom and dad,

So Saturday we all got sick. Sierra and I had a fever and vomiting and diarrhea. Sierra still has a fever of 100-103.7.  Dimitri, Alan and Kyle are sick now. Not as sick as Sierra appears to be,but heading there soon. He is throwing up and stooling out and has a fever of 100.7 as of an hour ago.

I expect to be well before you come for christmas next week. However, the hospital for Kyle is not out of the question. If that happens I won't be going to pick up lauren and the chair. If you guys would pick her up on Friday she can be home alone while you go to the temple. We can frame it as a test and she seems ready for that responsibility as we are discussing graduation in the near future and she will be alone then as well at times.

I'll need to chair brought up too. If there is no precipitation I don't care if the trailer is open or not. I also don't care if you take home the wood or not. I'm flexible on that. And I don't care which day you end up in Boise. As you always said "beggars can't be choosers". 😉 seriously though I've got bigger things to worry about.

So this plan isn't for sure till Kyle declares what his body needs. Just wanted to give you a heads up because when I was praying for him this morning instead of peace I started seeing who I could ask for what help to make the necessary things happen in the next two weeks. That chased away any sleep I hoped I might have gotten since I was up till 11 last night and up by 5 now and only barely better myself. (Yesterday was the first day I ate and was out of bed for any length of time since Saturday).

And no Dad,  I'm not having fun yet.

I'll keep everyone posted. Well at least you.

Love,
Spring

Merlin at work

Kyle had his service dog and friend at the hospital with him today. Merlin was dependable and comforting for me and Kyle. I'm pretty proud of him.

Kyle update 12/13/13

Kyle had surgery today for exotropia of his eyes and a dental exam. Prior to that he woke at 2;30 am dry heaving. He slept fitfully till 5:00-am at which point he was so uncomfortable that he couldn't sleep (guess who else didn't sleep). As we pulled up to he hospital he threw up. Hooray (or not). Some ladies walking nearby asked if I needed some help. Well maybe a little...thanks for noticing

Anyway, he had the surgery after a lengthy discussion about safety. Anesthia decided we could proceed. The surgery went smoothly. And we are home and he is resting.

He has had a lot of hard medically related days but this day he really suffered. Poor boy was miserable. He is having diarrhea and his eyes hurt and his vision is different. He is pretty upset about the while thing. I truly hope he can have some relief tomorrow.

Night night.

Spring

ENT update

So in my efficient fashion, I have found a local ENT to provide medical management of Kyles Ent needs. His name is Jacob Robison he is new to Boise and we just left his office. Kyle now has a local ENT for medical management and coordination of his hearing loss, his airway issues, his sinus issues, and his ear infection issues. The specific pieces will be managed by Dr Clough Shelton in Salt Lake City as the ear surgeon. And Dr. Sally Shott in Cincinnati as the airway surgeon. And Dr. Steve Jensen as the audiologist in Logan Utah. Sinuses and ear infections and direction of care will be managed by Dr. Robinson here in Boise. This is a big relief to have this piece in place.

Dr. Robinson also was very reassuring that I have the best people for Kyles complicated needs already involved. He said Dr. shot in Cincinnati is the best at airway management for kids with down syndrome and airway surgeries. He said that Clough Shelton in Salt Lake is the best ear surgeon in the area. That is very reassuring to me.

Kyle needs to have a right tympanoplasty revision. He also needs to have a tube in the left ear as soon as possible or a left tympanoplasty. The tympanoplasty is where the ear is cut and folded forward and the inner ear exposed and worked on. Then the part of the ear that you see is reattached to his little head. Very sad. Pretty sore.

This needs to happen before the end of January. With that said the airway surgery will likely be March. And hopefully we can bring Lauren home in February. However Lauren's return depends entirely on her.

So now the monster from last week is smaller. The portion that remains is to get all the medical records transferred hither and thither. At least it's coming together smoothly and before Christmas.

Spring

The first piece!

Did anyone else know today is Christmas? Yippie